Join the global porphyria community to raise awareness about Porphyria
Turn Purple for Porphyria
On May 18, join us in turning the world purple for porphyria:
Wear purple and encourage your friends, coworkers and classmates to join in too!
Approach local landmarks about turning purple (sample request letter). Check out this listing for landmarks in your area.
Create a #PurpleforPorphyria fundraising campaign for your national porphyria organization.
2. Let others know it’s Global Porphyria DAy
Update your social media headers for Global Porphyria Day and your profile picture with a frame
Send out a save the date to your networks
Create and share your #MyPorphyria story, and encourage others to participate
Wear #PurpleforPorphyria and encourage others to get involved!
3. Join the #myPorphyria campaign
Share your #MyPorphyria experience using the campaign graphics using the hashtag #MyPorphyria and tagging @GlobalPorphyria
Share campaign videos
